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Genetic Discrimination
BIO supports national legislation to protect the confidentiality of all individually identifiable medical information. We believe that this medical information must be respected, treated confidentially and safeguarded from discriminatory misuse.
Letter to Representatives Judy Biggert and Anna Eshoo (February 7, 2006)
Supporting the Genetic Information Nondiscrimination Act (GINA)
Read the Letter (9 KB PDF)
Letter to Sens. Judd Gregg and Edward Kennedy
Supporting legislation that prohibits genetic discrimination (May 19, 2003). Read (1.3 MB PDF).
Statement of J. Craig Venter, PhD, President, Celera Genomics
On Behalf of the Biotechnology Industry Organization Before the Subcommittee on Consumer Protection, U.S. House Committee on Energy and Commerce (July 11, 2001). Read.
Comments submitted to Secretary's Advisory Committee
On Genetic Testing in response to the public consultation (January 31, 2000). Read.
BIO Policy Statement Regarding the Prohibition of Discriminatory Use of Medical Information
Approved by BIO Board of Directors (March, 1999). Read.
Confidentiality of Patient Medical Records
BIO Policy Statement Regarding Genetic Privacy
Approved by BIO Board of Directors on September 18, 1996. Read.
BIO's Recommendations for National Privacy Legislation
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