BIO Statement on Iceland Genetic Data

  • Contact: Suzanne Tomlinson
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BIO has long been concerned about the possible misuse of genetic or medical information. Recent news reports about plans to collect data on the health histories of the people of Iceland acknowledge the benefits of data collection for the development of new treatments, as well as the potential for discriminatory misuse of the data. BIO believes these interests can be balanced as new technologies are used to identify and develop revolutionary treatments for diseases.

BIO opposes the discriminatory misuses of medical including genetic information and urges the development of safeguards and penalties to protect against misuse and to encourage the appropriate use of such information for medical research. For more information on BIO's positions and the work of our bioethics committee, visit the bioethics section of our web site, or contact Suzanne Tomlinson, BIO bioethics counsel.

About BIO
BIO is the world's largest trade association representing biotechnology companies, academic institutions, state biotechnology centers and related organizations across the United States and in more than 30 other nations. BIO members are involved in the research and development of innovative healthcare, agricultural, industrial and environmental biotechnology products. BIO also produces the BIO International Convention, the world’s largest gathering of the biotechnology industry, along with industry-leading investor and partnering meetings held around the world. BIOtechNOW is BIO's blog chronicling “innovations transforming our world” and the BIO Newsletter is the organization’s bi-weekly email newsletter. Subscribe to the BIO Newsletter.