When RARE is not so RARE!

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When RARE is not so RARE!

Type: 
Podcast

BIOtech Now spoke with Dean Suhr, COO of the RARE Project, to learn more about rare diseases. The RARE Project raises rare disease awareness, unifies and empowers a vibrant global rare disease community, and funds innovations to support 'in their lifetime' rare disease research. Dean has a passion for the enabling the power of patient groups no matter how small, and has been active in newborn screening, registries, and outcome studies for rare disease.