Mark is a retired Assistant Chief of Police who is the current Chairman of the Board of the Washington D.C.-based EveryLife Foundation for Rare Diseases, a science-based advocacy organization dedicated to accelerating biotech innovations for rare disease treatments through science-driven public policy. Mark is also the founder and Volunteer Executive Director of the Ryan Foundation and former President and CEO of the National MPS Society. Mark and his wife Jeanne founded the Ryan Foundation after their only child, three-year-old Ryan, was diagnosed with MPS I. At that time, life expectancy for children with MPS I was less than 15 years. Mark began an immediate global search for scientists and philanthropists who might aid in finding a treatment in time to help children and families living with MPS realize the promise of tomorrow. Today Mark spends his time now volunteering and helping to empower the patient advocate through the understanding that all of us have the power to turn action to hope and hope to reality.
11:50 AM - 12:00 PM (EDT)
Wednesday, June 16
The EveryLife Foundation for Rare Diseases is a 501(c)(3) nonprofit, nonpartisan organization…