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Speaker

Erica Barnes

EXECUTIVE DIRECTOR, MINNESOTA RARE DISEASE ADVISORY COUNCIL
Saint Paul, Minnesota, United States
Erica Barnes is co-founder and chairman of the board of directors of Chloe's Fight, Rare Disease Foundation.
Erica and her husband Philip founded CFRDF in honor of their late daughter Chloe Sophia Barnes (July 12, 2008-November 19, 2010). In addition to promoting rare disease research, she is employed as a speech-language pathologist in both the medical and educational setting. She is also mother to Eva (age 10 going on 14)and Cade, 24 months. Her interests include traveling, reading, writing, eating good food, and gardening. She also blogs for the Huffington Post and writes fiction. She is Chloe’s Fight tireless champion and has recently become the Minnesota Ambassador for the National Organization of Rare Disease.
Speaking In
[Available On-Demand]
What if patients were not patients anymore? For companies developing gene therapies for rare…