Modernizing Newborn Screening: High Patient Impact, Big Challenges

11:00 AM - 12:00 PM (PDT), Tuesday, June 14, 2022 ・ Upper Level, Session Room 11A

Our nation’s newborn screening system is a public health success but increasingly lags far behind advances in science.  Moreover, the current newborn screening system’s antiquated and bureaucratic processes could jeopardize public health goals as transformative therapies and advances in diagnostics, treatment, and care become embedded in our health care system.  This session will explore recent landmark studies and initiatives involved in modernizing our nation’s newborn screening system and incorporate broad stakeholder views.  Topics will include implications for health equity, treatment and care considerations, rare disease, and health care infrastructure.

Sponsored By
Moderator
photo
Vice President, Government Affairs and Policy
Travere Therapeutics, Inc.
Speakers
photo
Distinguished Fellow
RTI International
photo
Chief Strategy Officer
Genetic Alliance
photo
Assistant Director for Health Innovation
Office of Science and Technology Policy
photo
Director of Policy
EveryLife Foundation for Rare Diseases