Susan has CMT1A that she can trace back five generations in her mother’s family. Since 2007, she has been deeply engaged with the patient and research communities, building connections to fund efficient and effective research leading toward drug delivery.
From its launch in 2018, she was the Foundation’s CEO. In January 2022, she became the organization’s first Chief Mission Officer continuing to serve on the Board of Directors, helping support CMTRF’s rapid financial growth and serving as the primary spokesperson for the Foundation. Before that, she held an executive position with CMTA.
Susan builds a robust network of experts in drug delivery and patient advocacy and continues to be sought after by peers in patient-led drug discovery and as an expert in CMT. She has spoken about CMT at Georgia Tech, Emory University, Hanger, Inc., The American Orthotic and Prosthetic Association and BIO. Susan holds a Bachelor of Arts from Clemson University.
From its launch in 2018, she was the Foundation’s CEO. In January 2022, she became the organization’s first Chief Mission Officer continuing to serve on the Board of Directors, helping support CMTRF’s rapid financial growth and serving as the primary spokesperson for the Foundation. Before that, she held an executive position with CMTA.
Susan builds a robust network of experts in drug delivery and patient advocacy and continues to be sought after by peers in patient-led drug discovery and as an expert in CMT. She has spoken about CMT at Georgia Tech, Emory University, Hanger, Inc., The American Orthotic and Prosthetic Association and BIO. Susan holds a Bachelor of Arts from Clemson University.
Speaking In
11:00 AM - 12:00 PM (PDT)
Tuesday, June 14
Patient advocacy organizations (PAOs) are increasingly offering sophisticated resources and…
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