Speaker
Dylan Simon
DIRECTOR OF POLICY, EVERYLIFE FOUNDATION FOR RARE DISEASES
Washington, District of Columbia, United States
Dylan Simon currently serves as the Director of Policy for the EveryLife Foundation for Rare Diseases. Since joining the EveryLife Foundation, he has focused on newborn screening and diagnostic policy issues. Prior to that he interned for the Senate HELP Committee and worked at advocacy organizations. He began at Research America, where he advocated for increased support of policies that would allow for faster biomedical progress. After his time there, he moved to VeteransAgainstAlzheimer’s, where he worked to help launch the network, which focuses on improved treatment and caregiving for veterans who suffer from Alzheimer’s disease.
Speaking In
11:00 AM - 12:00 PM (PDT)
Tuesday, June 14
Our nation’s newborn screening system is a public health success but increasingly lags far…
1:45 PM - 2:45 PM (PDT)
Tuesday, June 14
The rare disease patient undergoes a diagnostic odyssey that takes five to eight years on average,…