Read what past Summit attendees had to say about their experience.
The Pancreatic Cancer Action Network is embarking on a new initiative called Precision Promise, a precision medicine clinical trial system for pancreatic cancer patients. We will be working with collaborators including researchers, clinicians, drug and diagnostic companies, and the FDA. We have funded clinical trials in the past, but never actually sponsored a clinical trial. Sponsoring clinical trials brings about new regulatory issues that we have not faced before, and the topics at the Summit are addressing some of those areas. My hope in attending the Summit is to better understand some of the issues we will be facing, how to address them and who the experts are that can help us.
The more informed and trained an advocate can be the better chance of making a difference in someone's life.
I learned a tremendous amount from the speakers and learned an equal amount from the attendees. It was a real pleasure to meet so many fascinating people.
This is an incredible opportunity to connect with stakeholders to learn more about potential collaborations, regulatory issues and the strength in bringing the patients voice early on in the process of therapy development to treat diseases. It would be wonderful to engage with other advocacy groups and other stakeholders that may see our vision and want to join forces in translating therapies for the Charcot-MarieTooth Community. In addition, we would hope that our experiences and successes could help others.