Attendee Testimonials - BIO Patient & Health Advocacy Digital Summit

The Pancreatic Cancer Action Network is embarking on a new initiative called Precision Promise, a precision medicine clinical trial system for pancreatic cancer patients. We will be working with collaborators including researchers, clinicians, drug and diagnostic companies, and the FDA. We have funded clinical trials in the past, but never actually sponsored a clinical trial. Sponsoring clinical trials brings about new regulatory issues that we have not faced before, and the topics at the Summit are addressing some of those areas. My hope in attending the Summit is to better understand some of the issues we will be facing, how to address them and who the experts are that can help us.

Julie Fleshman

President and CEO, Pancreatic Cancer Action Network

BIO Patient Health & Advocacy Summit 2019

Patients connect with biotech companies to learn what’s in the pipeline and to ensure their voice is integrated into the drug development process at #BIOSummit19

The more informed and trained an advocate can be the better chance of making a difference in someone's life.

Stewart Perry

Secretary, National Diabetes Volunteer Leadership Council

I learned a tremendous amount from the speakers and learned an equal amount from the attendees. It was a real pleasure to meet so many fascinating people.

Steve Horn

Director, State Government Relations, International Cancer Advocacy Network

This is an incredible opportunity to connect with stakeholders to learn more about potential collaborations, regulatory issues and the strength in bringing the patients voice early on in the process of therapy development to treat diseases. It would be wonderful to engage with other advocacy groups and other stakeholders that may see our vision and want to join forces in translating therapies for the Charcot-MarieTooth Community. In addition, we would hope that our experiences and successes could help others.

Allison Moore

CEO, Hereditary Neuropathy Foundation

The BIO Patient & Health Advocacy Summit is a very powerful intersection of pharma, biotech, and advocacy. The exchange of challenges, ideas, concerns, and opportunities at this BIO conferences is a very powerful force in refining the perspectives, thinking, and impacting future plans of those attending. The setting is modest in size allowing not just for superficial networking, rather there is time and space for in depth conversation and follow-up.

Dean Suhr

President, MLD Foundation