I AM BIO Patient Story: Mark Dant, Ryan Foundation and Annie Kennedy, EveryLife Foundation

[Available On-Demand]
The EveryLife Foundation for Rare Diseases is a 501(c)(3) nonprofit, nonpartisan organization dedicated to empowering the rare disease patient community to advocate for impactful, science-driven legislation and policy that advances the equitable development of and access to lifesaving diagnoses, treatments and cures. Mark Dant, the EveryLife Foundation Board Chair and Executive Director of the Ryan Foundation states that, “EveryLife is the organization that changed not just something, but changed everything. When advocates come to an EveryLife event, they see that they can make a difference. They may not have the same disorder, but they all have the same drive and, together, they really can move mountains.”
Executive Director
Ryan Foundation
Chief of Advocacy and Policy
EveryLife Foundation