Rose Juhasz, PhD

Rose Juhasz is a mom to a 14-year-old son diagnosed with Duchenne Muscular Dystrophy (DMD) in 2014. Professionally, she has nearly 20 years of experience conducting academic research and leading health system analytics units that focus on patient outcomes, preferences, and experiences related to routine healthcare and familial, social, and environmental factors across the lifespan. She has additional experience in supporting and evaluating healthcare delivery interventions aimed at improving experience, quality, and value of care for patients and families. Dr. Juhasz currently leads all patient experience, workforce engagement, and culture of safety assessments for University of Michigan Health, covering over 400,000 local lives and nearly 3 million across the state.

Rose holds a doctorate in cognitive experimental psychology from Indiana University. Her published work and invited presentations cover a variety of pediatric and adult populations within the areas of neuro-otology, psychiatry, oncology, and neuromuscular disease. She supports Parent Project Muscular Dystrophy work through participation on the Scientific Advisory Committee, Duchenne Drug Development Roundtable, and Steering Committee that provides updated guidance to the FDA on patient-focused drug development for DMD. She is co-chair on the guidance subcommittee focused on benefit and risk issues and overall patient experience considerations important to the drug development process for DMD. Her own son’s participation in a 4-year long drug trial guides her perspective and recommendations on the importance of elevating patient voice and engagement in drug development.
Speaking In
[Available On-Demand]
PPMD created and submitted the “Guidance for Industry Duchenne Muscular Dystrophy Developing Drugs…