Close

When RARE is not so RARE!

BIOtech Now spoke with Dean Suhr, COO of the RARE Project, to learn more about rare diseases. The RARE Project raises rare disease awareness, unifies and empowers a vibrant global rare disease community, and funds innovations to support 'in their lifetime' rare disease research. Dean has a passion for the enabling the power of patient groups no matter how small, and has been active in newborn screening, registries, and outcome studies for rare disease.