Raising PKU awareness

Following Wednesday's Keynote Luncheon, Governor Arnold Schwarzenegger of California met with John Adams Jr., a Phenylketonuria (PKU) patient who was diagnosed with the disease as a newborn. PKU is an inherited metabolic disorder that causes problems with brain development, leading to progressive mental retardation and seizures. Adam's father currently serves as the President & CEO of the Canadian PKU and Allied Disorders (CanPKU), a non-profit organization dedicated to help provide peer-to-peer family support, information sharing, research support, public education, and advocacy. Mr. Adams also volunteers as Treasurer of the Canadian Organization of Rare Disorders.