Biotech Companies Urge Congress to Pass Bipartisan ORPHAN Cures Act
February 26, 2024
We are writing to express our strong support for the bipartisan Optimizing Research Progress Hope and New Cures (ORPHAN Cures Act). The legislation, which was introduced by Reps. John Joyce (R-PA) and Wiley Nickel (D-NC) in September,1 corrects a significant flaw in the Inflation Reduction Act (IRA) concerning medicines for rare diseases. Senators Tom Carper (D- DE) and John Barrasso, M.D., (R-WY) introduced the Senate companion to the legislation.
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Biotech Companies Urge Congress to Pass Bipartisan ORPHAN Cures Act
The Biotechnology Innovation Organization appreciates the opportunity to comment on the Center for Medicare and Medicaid Services’ Information Collection Request on the Part C and Part D Medicare Prescription Payment Plan Model Documents.
The meeting of global trade ministers at the World Trade Organization’s 13th Ministerial Conference in Abu Dhabi offers an important opportunity to build on and strengthen the open and rules-based international trading system to support better…
We are writing to express our strong support for the bipartisan Optimizing Research Progress Hope and New Cures (ORPHAN Cures Act). The legislation, which was introduced by Reps. John Joyce (R-PA) and Wiley Nickel (D-NC) in September,1 corrects a significant flaw in the Inflation Reduction Act (IRA) concerning medicines for rare diseases. Senators Tom Carper (D- DE) and John Barrasso, M.D., (R-WY) introduced the Senate companion to the legislation.