Chris Marsh

Chris Marsh is a Managing Director at UBS financial services. In September of 2021, Chris and his wife Malinda learned that their youngest son was affected with Leber Hereditary Optic Neuropathy (LHON). In just over 1 year, Chris has become a leader in the LHON community, building partnerships between patient advocacy, clinicians and academic researchers, and biopharma companies.
In collaboration with RARE-X, Chris co-leads a Vision Consortium, believing that greater collaboration can advance disease understanding and meaningful therapies across many genetic disorders of vision loss. The Consortium is working to collect patient reported data, identify and share existing datasets, and develop a business model to create clear value for biotech and pharma companies to invest in a shared data access model.