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Biotech Companies Urge Congress to Pass Bipartisan ORPHAN Cures Act

February 26, 2024

We are writing to express our strong support for the bipartisan Optimizing Research Progress Hope and New Cures (ORPHAN Cures Act). The legislation, which was introduced by Reps. John Joyce (R-PA) and Wiley Nickel (D-NC) in September,1 corrects a significant flaw in the Inflation Reduction Act (IRA) concerning medicines for rare diseases. Senators Tom Carper (D- DE) and John Barrasso, M.D., (R-WY) introduced the Senate companion to the legislation.

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Biotech Companies Urge Congress to Pass Bipartisan ORPHAN Cures Act
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