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New Season of I am BIO Podcast to Showcase Life-Changing Biotech Breakthroughs
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Press Release  •  February 23, 2024
New Season of I am BIO Podcast to Showcase Life-Changing Biotech BreakthroughsLaunching February 27, spring 2024 season exploresa new CRISPR therapy, advances in microbiome research, biotech for pets and more WASHINGTON – (Feb. 23, 2024) – On February 27, the Biotechnology Innovation Organization (BIO) premiers its Spring season of the I am BIO podcast with a discussion of new options for sickle cell patients. A groundbreaking treatment using CRISPR technology provides new hope for the nearly 100,000 Americans living with sickle cell disease – a disease and community that has been neglected for decades.“The recent FDA gene-therapy approvals reflect breathtaking progress, not only for sickle cell patients, but also the biotech industry,” said BIO’s Chief Public Affairs and Marketing Officer, Rich Masters. “During this season of the podcast we uncover other amazing biotech innovations from new therapies based on the microbiome to advances in Alzheimer’s treatments to the real meaning of ‘organic.’ Our podcast tells the biotech story—which is as intriguing and exciting as any murder mystery series!” Guests on the I AM BIO podcast are knowledgeable experts who explain the science in clear, engaging narratives. Each year the podcast releases 12 episodes – six in the spring and six beginning in September.This season, look forward to episodes on:The microbiome.The real meaning of “organic”.Biotech for pets. New therapies for Alzheimer’s. Questions from our audience.The podcast consistently lands on “top 10 biotech podcast” lists including Labiotech, Excedr, and Vial. Listen now on BIO’s website, Apple Podcasts, Google Podcasts, or Spotify.###About BIOBIO is the premier biotechnology advocacy organization representing biotech companies, industry leaders, and state biotech associations in the United States and more than 35 countries around the globe. BIO members range from biotech start-ups to some of the world’s largest biopharmaceutical companies …
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How biomarkers can support rare disease pathways
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Good Day BIO Newsletter  •  February 23, 2024
BIO’s soon-to-be CEO John F. Crowley talks biomarkers and rare disease regulatory pathways, and U.S. Rep. Brett Guthrie explains the impact of policies to control drug prices. (557 words, 2 minutes, 47 seconds)
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Congressional Letter on use of Bayh-Dole Act to Control Drug Prices
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Letters, Testimony & Comments  •  February 22, 2024
A letter signed by 28 members of Congress urging President Biden to reconsider a NIST proposal to use the Bayh-Dole Act to "march in," weaken patents and exert federal control over prescription drug prices. 
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Bipartisan lawmakers oppose use of Bayh-Dole for price controls
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Good Day BIO Newsletter  •  February 22, 2024
Bipartisan lawmakers weigh in on NIST’s proposal to use Bayh-Dole to control drug prices, and USDA research highlights the impact of biotech on farm productivity. (487 words, 2 minutes, 26 seconds)
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Joint letter to Secretary of State Blinken, Commerce Secretary Raimondo, USTR Ambassador Tai and White House Chief of Staff Jeffrey Zients on the WTO TRIPS Waiver and upcoming WTO 13th Ministerial Conference
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Intellectual Property, Human Health  •  Letters, Testimony & Comments  •  February 21, 2024
The companies and workers represented by the undersigned organizations stepped up to combat the COVID-19 pandemic, investing in and creating hundreds of partnerships at an unprecedented speed and scale to leverage U.S. innovation and manufacturing capacity to create, produce and distribute critical products needed to save lives. U.S. industry has partnered with associations, governments, academia, civil society and international organizations to increase supply and delivery of those products to those most in need. These efforts helped bring the pandemic phase of COVID-19 in the U.S. and around the world to an end....
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Cell therapies advance – with BIO members
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Good Day BIO Newsletter  •  February 21, 2024
Today, we look at how BIO members are advancing cell therapies and a One Health program that’s reducing mosquito-borne disease. (479 words, 2 minutes, 23 seconds)  P.S. BIO Vice Chair (and incoming CEO) John F. Crowley will speak today, Feb. 21, at the Reagan-Udall Foundation for the FDA workshop about qualifying biomarkers to support rare disease regulatory pathways—click here to register to watch online.
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ORPHAN Cures Act 'can save countless lives'
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Good Day BIO Newsletter  •  February 20, 2024
A BIO Board member explains how the ORPHAN Cures Act can save rare disease drug development, and the world’s first GMO banana approved for human consumption could thwart a future “banana pandemic.” (619 words, 3 minutes, 5 seconds)
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Hill talks vaccine injury comp, PPRV
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Good Day BIO Newsletter  •  February 16, 2024
Wrapping up a busy week before the long weekend, with coverage of yesterday’s hearing on vaccine safety systems, a bill to reauthorize the Rare Pediatric Disease Priority Review Voucher Program, and what Agriculture Secretary Tom Vilsack said yesterday about climate tech for farmers. (691 words, 3 minutes, 27 seconds)  We’re taking a break on Monday, February 19, for President’s Day. We will return on Tuesday, February 20.
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The Creating Hope Reauthorization Act of 2024 Offers Hope to Kids Suffering From Rare Diseases
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Orphan & Rare Diseases, Rare Diseases  •  Press Release  •  February 15, 2024
The Creating Hope Reauthorization Act of 2024 was introduced in the House of Representatives this week. BIO CEO and President, Rachel King, made the following statement following the bill's introduction: "BIO strongly supports the House introduction of the Creating Hope Reauthorization Act of 2024. This bipartisan bill would reauthorize the Pediatric Rare Disease Priority Voucher Program for an additional four years. "The PPRV program provides critical incentives to promote R&D for drugs to treat rare diseases impacting children across the country. Ensuring this program remains intact provides stability and confidence for researchers and investors. "Rare diseases, by definition, impact a small percentage of the patient population. The costs of drug development paired with the risk involved of bringing a successful drug to market can often discourage investment in the rare disease space. This is especially true for rare diseases unique to children, including treatments for childhood cancers, muscular dystrophy, and more. "The PPRV program is a necessary step to ensure continued investment into cures and treatments for rare pediatric diseases. We thank Reps. Michael McCaul (R-TX), Anna Eshoo (D-CA), Gus Bilirakis (R-FL), Nannette Barragan (D-CA), Michael Burgess, M.D. (R-TX), and Lori Trahan (D-MA) for their leadership on the bill and look forward to working with Congress to get it across the finish line and provide hope to the millions of kids – current and future – suffering from diseases for which little or no cures exist."
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