Patient Advocacy & Alliances

BIO is committed to enhancing patient lives through the discovery, development, and delivery of treatments. To understand the needs of patients, we collaborate closely with patient organizations and caregivers. Patient Advocacy & Alliances serves as a bridge between BIO and third-party stakeholders, identifying mutual interests and fostering meaningful partnerships. We host regular educational programs and capacity-building initiatives, offering opportunities for stakeholder organizations to actively participate in BIO conferences and events. Join us in making a difference in patients.

Become an Advocate for Biotechnology
Become an Advocate for Biotechnology
Become an Advocate for Biotechnology

Sign-up to join BIOAction, BIO's grassroots advocacy program. You will be notified about relevant policy issues where we need you to contact your lawmaker.

Patient Advocacy and Health Summit

A two-day event to discuss timely policy issues and share best practices. 

 

 

BIO International Convention

Patient Advocacy Pavilion fosters partnerships between biopharma and nonprofits, advancing innovative therapies to cure and prevent disease, enhancing patient lives.

BIO Issue Briefs

We’ve made it easier for you to access information and share content about biotechnology and prescription medicines. 

 

 

Videos & Webinars

Access educational and advocacy recordings.

 

 

 

Hear John Crowley's Perspective as a Veteran and Advocate for Patients
BIO's Guiding Principles for Interaction with Patient Advocacy Organizations

BIO and its members share a commitment to discovering and developing innovative medicines to fight and cure disease and improve the lives of patients. In an effort to achieve our shared goals of bringing new treatments to patients, BIO and its members often work together with patient advocacy organizations to better understand the patients we serve, to help raise awareness and understanding of a disease, and to advance patient-focused public policies. To ensure that these collaborations respect the independence of all partners and are built on integrity and trust, BIO developed a set of guiding principles which reflect these values to help inform interactions between BIO members and the patient advocacy community. Click below to view the BIO's Guiding Principles for Interaction with Patient Advocacy Organizations.

 

Rare Diseases & Orphan Drugs
Rare Diseases & Orphan Drugs

7,000+ rare diseases, 30 new annually. Termed orphan diseases, they impact <200K patients in the U.S. each.

 

AMR is a Public Health Crisis
AMR is a Public Health Crisis

AMR kills 25K/year in the U.S. & 700K globally. By 2050, fatalities may hit 10M. A critical public health threat with no new antibiotics in 40 years.

 

Federal Policy
Federal Policy

Explore the latest updates, advocacy efforts, and policy initiatives championed by the Biotechnology Innovation Organization. 

 

Letters, Comments & Testimony
February 26, 2024
We are writing to express our strong support for the bipartisan Optimizing Research Progress Hope and New Cures (ORPHAN Cures Act). The legislation, which was introduced by Reps. John Joyce (R-PA) and Wiley Nickel (D-NC) in September,1 corrects a significant flaw in the Inflation Reduction Act (IRA…
December 7, 2023
The Council of State Bioscience Associations wrote House and Senate leaders to urge support of H.R. 5539 and S. 3131, the Optimizing Research Progress Hope and New Cures Act. 
Interested in learning more about BIO Alliance events?

BIO is proud to partner with stakeholder organizations to help advance our shared goal of bringing new treatments to patients with serious medical conditions and to support public policies that promote innovation and improve patient access.