BIO Digital

June 8-12, 2020

Patient Advocacy Pavilion

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Patient Advocacy Pavilion

The BIO Patient Advocacy Pavilion provides a forum for BIO attendees to meet with and explore potential collaborations between the biopharmaceutical industry and the nonprofit disease community to expedite the development of new and novel treatments.

The Pavilion was created to provides patient advocacy organizations, venture philanthropies, and the biotechnology industry with unique partnering and networking opportunities to advance their shared goal of developing innovative medicines to fight and cure disease and improve the lives of patients.

Patient Advocacy Pavilion Sponsored by:

Patient Advocacy Pavilion Participants

Addressing the need for information and newborn screening with respect to adrenoleukodystrophy.

Nonprofit organization dedicated to accelerating the pace of scientific discoveries and their application to improve the human experience.

A group of stakeholders and manufacturers, working together to ensure patients remain at the center of biosimilar policy discussions. 

American Cancer Society's nonprofit, nonpartisan affiliate, and critical to the fight for a world without cancer. 

Since 1980, the ACPA has offered peer support and education for those with chronic pain and their families. 

Influencing policy, mobilizing communities, and strengthening programs to improve the health of Asian & Pacific Islander Americans. 

An independent charitable patient assistance organization that helps patients and families facing high medical out-of-pocket costs. 

The first nonprofit organization created by Black women to help protect and advance the health and wellness of Black women and girls. 

A coalition of rare disease stakeholders raising awareness among the public and decision makers.

A non-profit network dedicated to ensuring that all people impacted by cancer are empowered by knowledge, strengthened by action, and sustained by community.

Driving collaboration among healthcare sectors to power advances in science, policy, and regulation.

We are the global voice for colon cancer, comprised of all patient groups dedicated to colorectal cancer. 

Improving those with peroxisomal disorders by funding research, championing scientific collaboration, and empowering families.

Improving the lives of individuals and families impacted by liver disease.

Increasing awareness and accurate diagnosis of Charcot-Marie-Tooth (CMT) and related inherited neuropathies.

Working with biopharma, researchers, regulators and advocates to accelerate and enhance the quality of pediatric clinical trials. 

Our mission is to strengthen, educate and further the well being of the Cystinuric community.

Enhancing quality of life for those impacted by lupus and allied diseases and other conditions of unmet needs.

Improving the quality of life for all people affected by lupus through comprehensive programs of research, education, support and advocacy. 

The nation's leading community-based nonprofit dedicated to addressing the needs of those living with mental illness.

Committed to transforming the lives of people affected by muscular dystrophy, ALS and related neuromuscular diseases.

Nation's largest grassroots mental health organization dedicated to building better lives for those affected by mental illness.

A nonprofit advocacy organization and public charity that provides a national voice for access to provider-administered medications.

A research focused patient advocacy group dedicated to accelerating research and effective treatments for Primary Nephrotic Syndrome.

A nonprofit whose mission is to connect young adults impacted by a rare or chronic condition with social and emotional support. 

A patient advocacy organization devoted to the education, early diagnosis, treatment, and cure of pituitary disorders.