Schedule & Agenda
BIO Patient & Health Advocacy Digital Summit
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BIO Patient & Health Advocacy Digital Summit
Wednesday, October 27
11:00 AM - 12:00 PM (EDT)
Kick off the 2021 Summit and join us for a casual networking event to meet fellow advocates and…
12:00 PM - 1:15 PM (EDT)
Welcome remarks by Julie Gerberding, MD, MPH, Executive Vice President and Chief Patient Officer,…
1:20 PM - 1:50 PM (EDT)
During the past year, organizations have had to adjust as we turned to a completely online platform…
1:50 PM - 2:00 PM (EDT)
Join us for a gentle yoga session to energize you for an afternoon of interesting content.
2:00 PM - 2:45 PM (EDT)
Panelists will discuss how patients can bring important data to, for example, FDA Advisory…
2:45 PM - 3:30 PM (EDT)
This session will explore how to best navigate the delicate balance between patient advocacy groups…
3:45 PM - 4:15 PM (EDT)
Join us for an in-depth conversation with Dr. Chris Ritter, Patient Care Models Director, Center…
4:30 PM - 5:05 PM (EDT)
Join us for a special fireside chat to discuss the importance of storytelling during a time when…
Thursday, October 28
12:00 PM - 12:35 PM (EDT)
Welcome remarks by Eric Dube, PhD, President and Chief Executive Officer, Travere Therapeutics.
…
12:35 PM - 12:45 PM (EDT)
Join us for a meditation break to relax you before an afternoon of interesting content.
12:45 PM - 1:30 PM (EDT)
Congressional staff look back on the past year and a half of COVID-19 and discuss how the pandemic…
1:30 PM - 2:15 PM (EDT)
This discussion will review legislation in Congress and the ultimate impact these proposals will…
2:15 PM - 3:00 PM (EDT)
Join us for an informal networking break to meet with other advocates and discuss lessons learned…
3:00 PM - 3:45 PM (EDT)
Hear from officials on how patients can engage at their respective Federal agencies. Panelists will…
3:50 PM - 4:35 PM (EDT)
Leveraging an online polling tool, we will walk through an advocacy scenario and make choices…
4:40 PM - 5:30 PM (EDT)
Join us for a one on one interview with David Wasserman, the U.S. House editor and senior election…
Available On-Demand
CSC’s Forum on Utilization Management seeks to understand the impact of utilization management…
In 2008, Melissa Bryce Gamble's daughter Ginny was born with a peroxisomal disorder. It took almost…
Diagnosed with ALS at the age of 37, Lorri Carey is the author of the podcast 'I'm Dying to Tell…
The EveryLife Foundation for Rare Diseases is a 501(c)(3) nonprofit, nonpartisan organization…
Melodie Narain-Blackwell is a serial entrepreneur and health advocate, who has always been…
The American Lung Association is the leading organization working to save lives by improving lung…
Sanath is a bold and visionary software leader, open source pioneer and a rare disease drug…
Tom has been part of Sepsis Alliance since 2007, serving as President and CEO since 2013. Tom has…
Vincenzo Piscopo began his tenure as United Spinal’s president and CEO on November 16, 2020…
Hear patient advocates discuss challenges and opportunities in bringing the patient voice to value…
NEA Ambassadors are patients living with eczema who want to make a difference in their community by…
NHCOA is committed to providing patients with improved healthcare and a better quality of life,…
There is nothing scarier than going through a health crisis alone, that’s why NephCure’s Patient…
PPMD created and submitted the “Guidance for Industry Duchenne Muscular Dystrophy Developing Drugs…
Patients are more involved in their healthcare decision-making today than ever before, and are…
Advocacy, Support, Perspective, Empowerment, Communication, and Training, that’s what the ASPECT…
The Daddy’s Boys campaign seeks to normalize talking about prostate health and emphasize the…
Tourette Ambassadors span in ages 13-25 and provide and opportunity for those living with Tourette…
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