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BIO Patient & Health Advocacy Digital Summit   |   October 27-28, 2021

Schedule & Agenda

BIO Patient & Health Advocacy Digital Summit
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BIO Patient & Health Advocacy Digital Summit
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Wednesday, October 27
11:00 AM - 12:00 PM (EDT)
Networking Session - Day 1

Kick off the 2021 Summit and join us for a casual networking event to meet fellow advocates and…

Networking and Activities
12:00 PM - 1:15 PM (EDT)
The Road to Achieving Health Equity and Diversity

Welcome remarks by Julie Gerberding, MD, MPH, Executive Vice President and Chief Patient Officer…

Education Session
1:15 PM - 1:20 PM (EDT)
Break
Take 5 minutes to step away from your computer and gear up for the next session!
Breaks
1:20 PM - 1:50 PM (EDT)
Best Practices for Hybrid Events
During the past year, organizations have had to adjust as we turned to a completely online platform…
Education Session
1:50 PM - 2:00 PM (EDT)
Stretch Break Featuring Recorded Yoga Exercises by Michelle Keefe
Join us for a gentle yoga session to energize you for an afternoon of interesting content.
Networking and Activities
2:00 PM - 2:45 PM (EDT)
Representing the Patient Voice with Data
Panelists will discuss how patients can bring important data to, for example, FDA Advisory…
Education Session
2:45 PM - 3:30 PM (EDT)
Managing Relationships Between Patient Groups and Industry
This session will explore how to best navigate the delicate balance between patient advocacy groups…
Education Session
3:30 PM - 3:45 PM (EDT)
Break
Take 15 minutes to step away from your computer and gear up for the next session!
Breaks
3:45 PM - 4:15 PM (EDT)
Fireside Chat with Dr. Chris Ritter, Patient Care Models Director, Center for Medicare and Medicaid Innovation, Center for Medicare and Medicaid Services

Join us for an in-depth conversation with Dr. Chris Ritter, Patient Care Models Director, Center…

Fireside Chat
4:15 PM - 4:30 PM (EDT)
Break
Take 15 minutes to step away from your computer and gear up for the final session of the day!
Breaks
4:30 PM - 5:05 PM (EDT)
The Power of Storytelling with Steve Clemons, Editor-At-Large for The Hill

Join us for a special fireside chat to discuss the importance of storytelling during a time when…

Fireside Chat
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Thursday, October 28
12:00 PM - 12:35 PM (EDT)
Propelling Patient-Centered Improvements in Clinical Trials

Welcome remarks by Eric Dube, PhD, President and Chief Executive Officer, Travere Therapeutics.<…

Fireside Chat
12:35 PM - 12:45 PM (EDT)
Meditation Break Featuring Recorded Exercises by Michelle Keefe
Join us for a meditation break to relax you before an afternoon of interesting content.
Networking and Activities
12:45 PM - 1:30 PM (EDT)
Lessons Learned from the Pandemic

Congressional staff look back on the past year and a half of COVID-19 and discuss how the…

Education Session
1:30 PM - 2:15 PM (EDT)
Legislative Outlook: Patient Access and Affordability
This discussion will review legislation in Congress and the ultimate impact these proposals will…
Education Session
2:15 PM - 3:00 PM (EDT)
Networking Session - Day 2

Join us for an informal networking break to meet with other advocates and discuss lessons…

Networking and Activities
3:00 PM - 3:45 PM (EDT)
Patient Engagement Across Federal Agencies
Hear from officials on how patients can engage at their respective Federal agencies. Panelists will…
Education Session
3:45 PM - 3:50 PM (EDT)
Break
Take 5 minutes away from your computer and gear up for the next session!
Breaks
3:50 PM - 4:35 PM (EDT)
Game with Beekeeper Group: Choose Your Own Advocacy Adventure
Leveraging an online polling tool, we will walk through an advocacy scenario and make choices…
Networking and Activities
4:35 PM - 4:40 PM (EDT)
Break
Take 5 minutes away from your computer and gear up for the final session of the 2021 BIO Patient &…
Breaks
4:40 PM - 5:30 PM (EDT)
Politics and Prognostication on the Current Political Climate with David Wasserman, Senior Election Analyst, The Cook Political Report with Amy Walter and NBC Contributor

Join us for a one on one interview with David Wasserman, the U.S. House editor and senior…

Keynote
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Available On-Demand
BIO Cares
Catch the premier of the BIO Cares video in the kick of Networking session Wednesday, October 27 at…
On Demand
Cancer Support Community
CSC’s Forum on Utilization Management seeks to understand the impact of utilization management…
Patient Organization Video
I AM BIO Patient Story: Eve Dryer, Travere and Melissa Bryce Gamble, Global Foundation for Peroxisomal Disorders
In 2008, Melissa Bryce Gamble's daughter Ginny was born with a peroxisomal disorder. It took almost…
I AM BIO Patient Story
I AM BIO Patient Story: Lorri Carey, Patient & Author
Diagnosed with ALS at the age of 37, Lorri Carey is the author of the podcast 'I'm Dying to Tell…
I AM BIO Patient Story
I AM BIO Patient Story: Mark Dant, Ryan Foundation and Annie Kennedy, EveryLife Foundation
The EveryLife Foundation for Rare Diseases is a 501(c)(3) nonprofit, nonpartisan organization…
I AM BIO Patient Story
I AM BIO Patient Story: Melodie Narain-Blackwell, Color of Crohn's & Chronic Illness, Inc.
Melodie Narain-Blackwell is a serial entrepreneur and health advocate, who has always been…
I AM BIO Patient Story
I AM BIO Patient Story: Rebecca Glommen, Patient Advocate and Laura Kate Bender, American Lung Association
The American Lung Association is the leading organization working to save lives by improving lung…
I AM BIO Patient Story
I AM BIO Patient Story: Sanath Kumar Ramesh, Founder & CEO of OpenTreatments Foundation
Sanath is a bold and visionary software leader, open source pioneer and a rare disease drug…
I AM BIO Patient Story
I AM BIO Patient Story: Thomas Heymann, Sepsis Alliance
Tom has been part of Sepsis Alliance since 2007, serving as President and CEO since 2013. Tom has…
I AM BIO Patient Story
I AM BIO Patient Story: Vincenzo Piscopo, United Spinal Association
Vincenzo Piscopo began his tenure as United Spinal’s president and CEO on November 16, 2020…
I AM BIO Patient Story
Lessons Learned from Value Reviews
Hear patient advocates discuss challenges and opportunities in bringing the patient voice to value…
On Demand
National Eczema Association
NEA Ambassadors are patients living with eczema who want to make a difference in their community by…
Patient Organization Video
National Hispanic Council on Aging (NHCOA)
NHCOA is committed to providing patients with improved healthcare and a better quality of life,…
Patient Organization Video
NephCure Kidney International
There is nothing scarier than going through a health crisis alone, that’s why NephCure’s Patient…
Patient Organization Video
Parent Project Muscular Dystrophy (PPMD)
PPMD created and submitted the “Guidance for Industry Duchenne Muscular Dystrophy Developing Drugs…
Patient Organization Video
Patient Perspectives: Elevating Our Voices to Advance Innovation
Patients are more involved in their healthcare decision-making today than ever before, and are…
On Demand
Paul Hastings' Acceptance Speech
Hear from BIO’s Board Chair, Paul Hastings.
On Demand
Prevent Blindness
Advocacy, Support, Perspective, Empowerment, Communication, and Training, that’s what the ASPECT…
Patient Organization Video
Prostate Health Education Network
The Daddy’s Boys campaign seeks to normalize talking about prostate health and emphasize the…
Patient Organization Video
Tourette Association of America
Tourette Ambassadors span in ages 13-25 and provide and opportunity for those living with Tourette…
Patient Organization Video
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